My HeartMate II LVAD was a life saver. Established, April 2, 2010. The occasional entries for this blog were battery powered for 38 months. I owe continued life to the wonderful people at Thoratec, my cardiologists, Mayo Clinic surgeons, the University of Minnesota Fairview LVAD and transplant teams, and most importantly my caregiving family. On June 8, 2013, I was blessed with a heart transplant and now am no longer bionic. The journey of life continues.
Popular Posts
-
Here is my story of congestive heart failure and a return to life with a left ventricular assist device, my HeartMate II, an LVAD, ...
-
I've been driving for several decades and have a decent driving record. To be practical, having an LVAD is no impediment for me t...
-
This is another in a series of recollections of my time as a trial lawyer. It is made possible by my HeartMate II, left ventricular as...
-
For the last five weeks, I have been fighting a driveline site infection. From reviews of the infected area by the LVAD support team at the...
-
One of the attractions of the Christmas season in Chicago, was to see the animated figures in the windows at Marshall Field's. All of th...
-
Since September, 2010, I have been attending monthly gatherings in Fargo of those who have LVADs and some who have had heart transplants...
-
Yippee Ki Yay, driveline infection. I write with apologies to Johnny Mercer, fabled songwriter, and John McClane, fabled Bruce Willis good...
-
This was the week that was. In the spirit of a Japanese proverb: Fall seven times, stand up eight. LVADs have their share ...
-
I got the chance to be a "show and tell" exhibit for 60 plus EMTs at F-M Ambulance, the ambulance service in the Fargo-Moo...
-
This reminiscence is made possible by my 27 month old HeartMate II LVAD, without which I would not be alive. At the time of th...
Popular Posts
-
Here is my story of congestive heart failure and a return to life with a left ventricular assist device, my HeartMate II, an LVAD, ...
-
I've been driving for several decades and have a decent driving record. To be practical, having an LVAD is no impediment for me t...
-
This is another in a series of recollections of my time as a trial lawyer. It is made possible by my HeartMate II, left ventricular as...
-
For the last five weeks, I have been fighting a driveline site infection. From reviews of the infected area by the LVAD support team at the...
-
One of the attractions of the Christmas season in Chicago, was to see the animated figures in the windows at Marshall Field's. All of th...
-
Since September, 2010, I have been attending monthly gatherings in Fargo of those who have LVADs and some who have had heart transplants...
-
Yippee Ki Yay, driveline infection. I write with apologies to Johnny Mercer, fabled songwriter, and John McClane, fabled Bruce Willis good...
-
This was the week that was. In the spirit of a Japanese proverb: Fall seven times, stand up eight. LVADs have their share ...
-
I got the chance to be a "show and tell" exhibit for 60 plus EMTs at F-M Ambulance, the ambulance service in the Fargo-Moo...
-
This reminiscence is made possible by my 27 month old HeartMate II LVAD, without which I would not be alive. At the time of th...
Monday, January 26, 2015
Greetings from Arizona's Sonoran Desert
First of all, I'm grateful to be here to enjoy life in the desert. It has been nearly five years since heart failure literally stopped me cold.
A HeartMate II left ventricular assist device, a battery powered internal heart pump, kept me going for 1,161 days as I waited for a suitable heart for transplant. When you're on a transplant waiting list, there are no guarantees. The wait for me was just over three years but I am most fortunate. I am heart recipient number 788 in the University of Minnesota Heart Center's continuing transplant program, having received the gift of life June 8, 2013. But back to the desert. I've been hiking in the desert almost daily for the last several weeks.
The desert landscape is fascinatingly beautiful and potentially dangerous as well. The transplant team at the U of MN cleared me to travel out here and enjoy some warm weather. Warm at this time of year is in the 60s during the day. That's 60 degrees above Zero.
The desert is unique for a person more accustomed to leafy trees, flowing water, still water, flat land and rolling hills, and growing grass.
Here, east of Phoenix, the mountains rise all around forming a valley. You can see a pollution film, a haze hanging over parts of the valley. It's common most days and causes breathing alerts.
Breathing is actually a large part of the potential danger of the desert. For those with suppressed immune systems, airborne fungus spores are the menace. It's not the scorpions, poisonous snakes or gila monsters that pose the problem, but simple airborne spores.
The spores are in the ground but after a rain the wind stirs them up. Farming, road construction, general construction activities disturb the soil and fungal spores, too tiny to be caught by the average surgical mask, come to the surface and can be carried hundreds of miles through the air. Therein hangs the tale.
It's called Valley Fever and you never see it coming. The federal Center for Disease Control calls it a "silent epidemic." Persons affected often get a bronchitis or pneumonia-like condition. There is no proven vaccine. The disease usually clears up on its own but it can recur or be permanent and is sometimes deadly, especially for those with compromised immune systems.
Oral anti-fungal medications for humans have proven effective in serious cases. But dogs and cats as well as all mammals in zoos and in the wild are susceptible.
The endemic areas where the infection is present includes the southwestern United States: Arizona, New Mexico, Utah, Nevada and California.
Two state prisons in Southern California on the western edge of the San Joaquin Valley recorded 3,000 cases per 100,000 people in 2005-06. A lawsuit against the state for permitting inmates to be subjected to Valley Fever conditions. A receiver appointed to oversee the prisons ordered susceptible inmates to be moved out of danger.
The incidence of Valley Fever varies widely. Here in Maricopa County Arizona around Phoenix there were 3,450 cases reported in 2007, which converts to 1 case per 100,000 persons in an estimated population of 3.8 million.
By contrast in New Mexico there were 35 cases reported in 2008 and 23 cases in 2007. Those figures are for the entire state and converts to 1 case in 56,685 persons. The estimated population of New Mexico was 1.9 million.
Valley Fever incidence is on the rise nationally. In 2011 the reported number of cases nationally was 42.6 per 100,000 persons.
That was an increase from 1998 of 5.3 per 100,000 people. That's a significant almost explosive increase.
As for prevention, that is a difficult question in a Valley Fever endemic area. If you're here, you are potentially exposed. So stay out of blowing dust and dust storms. You can see the serious dust storms--haboobs--coming from 20 to 30 miles away. They don't happen often, fortunately. Since you cannot see the micro sized spores, stay out of high wind situations.
Subscribe to:
Post Comments (Atom)
Good to see a post, I've wondered how you are doing! Sounds like you are doing quite well.
ReplyDeleteI am very happy to see your 2015 post.
ReplyDeletebut I have a request and some questions.
may I see a picture of your driveline port in your body ?
How do you dress it? every day? How do you clean it ?
dose it have any infection since 2010?
Hi, my name is Melissa Owen and I am a doctoral candidate at Rush University in Chicago, Illinois. For my project, I am currently recruiting transplant candidates and recipients to participate in a study about the experience of awaiting transplant. I would like to interview you about your experience via telephone. You will receive a $25 gift card after completion of the interview as compensation for your time. If you are interested in participating, please contact me at melissa_i_owen@rush.edu. Thank you!
ReplyDeleteMy husband is 6 weeks post heartmate 3. We split up in 2012 but only live a few hundred yards from each other so essentially we not together. Culturally we are miles apart. He is Muslim, all his 9 siblings and parents in Pakistan.i work full time and have a dog which I walk twice daily. Every week I drove to see him every week as he had nobody else. Now he comes every week to get all his body washed as can't do hiself. I feel very little support for carers. All his operation, all his dressings, everything taken care of by NHS. They weren't going to allow him dressings done at local health centre as want family member should do. I find stressful as I get zero support.
ReplyDelete