The cardio team at UMMC concluded that I have no infection causing gastric issues so the culprit is likely the anti-rejection meds. But I only lasted one day out of the hospital before returning for "close observation," electrolyte level check, and general blood panels to check organ functions. But the anti-rejection meds need constant monitoring and adjusting. The other issue under scrutiny is a nagging and persistent cough.
One of my fellow heart transplant friends told me it took eight months for him to feel relatively normal. He was plagued by all of my complaints and then some.
Those medications are at the core of keeping my new heart but they often wreak havoc on the gut. I suspect it is like riding a camel with attendant ups and downs and all arounds.
At any rate, I lasted a day out of the hospital and then returned for observation because the gastric issues seem to be getting more severe. It only feels like going through hell. The docs say it will take time to resolve and to hang in there.
Small price to pay for a new heart, right? I am adamant that I will keep going. I'm not at the end of my rope but I've secured it to my wrist, and am holding on, so I won't fall if I do reach the end of my rope.
The cardio team and consultants have been trying to learn what my lung ailment might be. Some form of pneumonia is likely and it could have been caused by inhaling fungus spores. With a suppressed immune system, many things are possible.
On the organ donor front, did you know that up to 60 persons can be helped by an organ donation from one donor?
Age is no issue for a prospective donor, but a donor must be registered. The oldest donor on record was 92. Even, I can be a donor, new heart and all.
Have the conversation with your family now. Don't wait. Your selfless gift will change lives.
My HeartMate II LVAD was a life saver. Established, April 2, 2010. The occasional entries for this blog were battery powered for 38 months. I owe continued life to the wonderful people at Thoratec, my cardiologists, Mayo Clinic surgeons, the University of Minnesota Fairview LVAD and transplant teams, and most importantly my caregiving family. On June 8, 2013, I was blessed with a heart transplant and now am no longer bionic. The journey of life continues.
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Here you are!!! I guess when you put "andbeyond" in the address, it stopped showing up on my dashboard. (The old address says the blog has been removed) So glad I found you and you are doing okay.
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ReplyDeleteNever mind, I finally got it to show up. Sorry.
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