tag:blogger.com,1999:blog-4841195985005961304.comments2023-08-21T08:16:50.806-07:00As You Were With a HeartMate II and BeyondAnonymoushttp://www.blogger.com/profile/04894710284605375776noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-4841195985005961304.post-32476497110783526322020-12-20T15:31:59.039-08:002020-12-20T15:31:59.039-08:00OMG I have been searching for info on the monorail...OMG I have been searching for info on the monorail for years. Delighted to know what store it was. Riding it is a precious memory from my childhood. Thank you!Anonymoushttps://www.blogger.com/profile/01235669953916851912noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-23117130435886059702019-09-22T14:57:07.503-07:002019-09-22T14:57:07.503-07:00My husband is 6 weeks post heartmate 3. We split u...My husband is 6 weeks post heartmate 3. We split up in 2012 but only live a few hundred yards from each other so essentially we not together. Culturally we are miles apart. He is Muslim, all his 9 siblings and parents in Pakistan.i work full time and have a dog which I walk twice daily. Every week I drove to see him every week as he had nobody else. Now he comes every week to get all his body washed as can't do hiself. I feel very little support for carers. All his operation, all his dressings, everything taken care of by NHS. They weren't going to allow him dressings done at local health centre as want family member should do. I find stressful as I get zero support.Anonymoushttps://www.blogger.com/profile/07947847371738359216noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-54668614677041671032019-09-18T12:31:29.324-07:002019-09-18T12:31:29.324-07:00This comment has been removed by the author.N0QBHhttps://www.blogger.com/profile/04419185294271715585noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-11371500902542926482019-01-23T22:06:19.254-08:002019-01-23T22:06:19.254-08:00I suppose infections are treated depending upon th...I suppose infections are treated depending upon the recipient's tolerance of remedies. I've been fighting infections since March 2017, my LVAD was placed in January 2017. So, it has been a journey and I'm thankful for it! Best wishes to all!Harmony 4 Nutritionhttps://www.blogger.com/profile/02703286487467729738noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-6850726075683785082018-12-23T17:28:30.217-08:002018-12-23T17:28:30.217-08:00Thanks for this my mother always talks about this ...Thanks for this my mother always talks about this and was thrilled to see a picture.Anonymoushttps://www.blogger.com/profile/15876366898120012811noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-84792807888318409382017-10-26T09:37:12.776-07:002017-10-26T09:37:12.776-07:00I'm from LVADshirt and looking for contact wit...I'm from <a href="https://www.lvadshirt.com" rel="nofollow">LVADshirt</a> and looking for contact with you. Can you e-mail me?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-27582462248587540402015-05-22T03:13:09.078-07:002015-05-22T03:13:09.078-07:00I can't believe it has been almost 2 years! C...I can't believe it has been almost 2 years! Congratulations and Happy Rebirthday!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-41735464371378058992015-05-11T18:56:38.945-07:002015-05-11T18:56:38.945-07:00Hi, my name is Melissa Owen and I am a doctoral ca...Hi, my name is Melissa Owen and I am a doctoral candidate at Rush University in Chicago, Illinois. For my project, I am currently recruiting transplant candidates and recipients to participate in a study about the experience of awaiting transplant. I would like to interview you about your experience via telephone. You will receive a $25 gift card after completion of the interview as compensation for your time. If you are interested in participating, please contact me at melissa_i_owen@rush.edu. Thank you!Anonymoushttps://www.blogger.com/profile/04285828785772188251noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-56118152452141054582015-05-01T08:51:39.316-07:002015-05-01T08:51:39.316-07:00I am very happy to see your 2015 post.
but I have...I am very happy to see your 2015 post. <br />but I have a request and some questions.<br />may I see a picture of your driveline port in your body ?<br />How do you dress it? every day? How do you clean it ? <br />dose it have any infection since 2010?Anonymoushttps://www.blogger.com/profile/02180991082913766917noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-26182231021394157752015-01-26T11:33:54.836-08:002015-01-26T11:33:54.836-08:00Good to see a post, I've wondered how you are ...Good to see a post, I've wondered how you are doing! Sounds like you are doing quite well.Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-74359843870111535992014-12-02T17:11:17.287-08:002014-12-02T17:11:17.287-08:00Glad to hear you are doing well! I watched a vide...Glad to hear you are doing well! I watched a video on the "Ghost Heart". Pretty amazing stuff on the horizon.Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-91382840136715747442014-08-20T10:18:14.623-07:002014-08-20T10:18:14.623-07:00I miss my fur babies!I miss my fur babies!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-89256764155715857632014-08-20T08:06:14.216-07:002014-08-20T08:06:14.216-07:00Hey, that's Peter's blog... he went to Cal...Hey, that's Peter's blog... he went to California and got his new heart!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-6837749685091192012014-08-20T08:00:36.360-07:002014-08-20T08:00:36.360-07:00The link you posted should have a dot, rather than...The link you posted should have a dot, rather than an @. The @ makes it show as an email address.Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-68536371052760906682014-03-25T18:12:08.733-07:002014-03-25T18:12:08.733-07:00My son can't have the biopsies via the neck, o...My son can't have the biopsies via the neck, or the right groin. After all the procedures he's had done and the problems he's had, those all have blockages. So far, they have still been able to access it from the left groin, but it's more difficult.<br /><br />God bless you guys for all you have to endure, including the toxic cocktail of medications, which are enough to kill a large, healthy elephant!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-78104657916255957972014-03-07T18:41:20.707-08:002014-03-07T18:41:20.707-08:00My son had a transplant on February 3rd and I can ...My son had a transplant on February 3rd and I can totally agree with what you're saying. AND, each person is different, so what may work for one person, might not work with another. Oooooh... and that toxic cocktail is very hard to predict, too.<br /><br />My hat's off to your wife and to you for showing her the consideration and appreciation she deserves! Wish my son had a thimble full of that, for all that his Dad and I do, have gone through and have sacrificed for him.<br /><br />Continued best wishes!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-20186731914757790922014-03-07T17:16:24.090-08:002014-03-07T17:16:24.090-08:00Dennis,
Amazing story of this battle for life. Fig...Dennis,<br />Amazing story of this battle for life. Fight on, my friend.<br />MpMJPhttps://www.blogger.com/profile/06352958922280948423noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-71447474295054966072014-01-21T09:13:13.908-08:002014-01-21T09:13:13.908-08:00The new heart came with a fungus? That's scar...The new heart came with a fungus? That's scary! Glad to hear you have recovered from that.Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-12081543951129572942014-01-10T20:00:22.652-08:002014-01-10T20:00:22.652-08:00I follow Peter Quimby and was shocked to hear his ...I follow Peter Quimby and was shocked to hear his dad had to have an LVAD... and saw the humorous glove! His poor mom must be beside herself!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-39163616613192678312013-12-08T10:18:45.265-08:002013-12-08T10:18:45.265-08:00Guess I'm not going to read the article, since...Guess I'm not going to read the article, since it would require logging in and creating yet another password. Heck!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-71589173216527433892013-12-08T10:14:47.533-08:002013-12-08T10:14:47.533-08:00The clotting in the pump is what happened to my so...The clotting in the pump is what happened to my son... twice. They decided not to do a third pump and were hoping he had recovered enough heart function to survive without one. I'm going to look at that link and forward it to him, too!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-68356226280094364662013-10-26T21:05:17.910-07:002013-10-26T21:05:17.910-07:00Good to hear it! I know how much your attitude is...Good to hear it! I know how much your attitude is bound to help with your rehabilitation and getting back to a relatively normal life. Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-68367230922298650522013-10-03T16:43:18.692-07:002013-10-03T16:43:18.692-07:00After developing a clot in the second pump, after ...After developing a clot in the second pump, after only two months, my son was supposed to be listed as 1-A and they would be keeping him in the hospital until transplant. Dr. "Big" came in and turned the pump WAY DOWN and my son immediately felt better, more energetic and his labs improved greatly. Tomorrow morning they are removing the pump. Everyone at the hospital, including the doctors, are shocked and surprised at what is occurring. Hopefully, if there are no major complications, he will be able to leave the hospital and have a relatively normal life, not tied to a cord and once again waterproof. Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-34286762126695468072013-09-24T00:04:50.435-07:002013-09-24T00:04:50.435-07:00Home is going to look so dang good!Home is going to look so dang good!Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.comtag:blogger.com,1999:blog-4841195985005961304.post-14151145377531927672013-09-13T02:30:19.490-07:002013-09-13T02:30:19.490-07:00Never mind, I finally got it to show up. Sorry.Never mind, I finally got it to show up. Sorry.Ms. Ahttps://www.blogger.com/profile/06263882972749791087noreply@blogger.com